Pediatric Cerebral Palsy Track
Pediatric Cerebral Palsy & Neuro-Motor Delays: New Approaches
presented by Euro-Peds
Surveys indicate that Cerebral Palsy is one of the few pediatric disorders that is actually increasing. The United Cerebral Palsy (UCP) organization estimates that "some 764,000 children and adults in the United States manifest one or more of the symptoms of cerebral palsy. Currently, about 8,000 babies and infants are diagnosed with the condition each year and some 1,200 - 1,500 preschool age children are recognized each year to have CP." This WCD conference track aims at educating attendees on hopeful new approaches & attitudes in the treatment of children Cerebral Palsy (as well as other pediatric gross motor disabilities).
Friday 11:00AM – 11:50AM
Presenter: Dr. David Yngve, Professor of Orthopedic Surgery & Rehabilitation and Professor of Pediatrics at The Univ. of Texas Medical Branch.
Dr. Yngve specializes in a new minimally invasive surgical procedure for CP (orig. pioneered by Dr. Roy Nuzzo) as an alternative to more invasive surgery or Botox injections. To date, Dr. Yngve has done over 100 cases in Texas and is continuing research on the outcomes of Percutaneous Release of contractures in Cerebral Palsy (PERCS).
Friday 1:00PM – 1:50PM
Presenter: Michelle Saunders Haney, PT, MSPT/Director of Euro-Peds National Center for Intensive Pediatric PT.
Intensive Pediatric Physical Therapy has been emerging as an effective complementary treatment for children and young adults with gross motor delays such as CP, Spina Bifida and TBI. This presentation will explain the difference between intensive PT and traditional, provide research, and provide video examples of specific techniques used during the treatment sessions.
Friday 2:00PM – 2:50PM
Presenter: Leonard Elbaum, EdD, PT / Associate Professor of Physical Therapy, College of Nursing and Health Sciences, Florida International University
Giant Steps is an innovative, evidence-based, cost-effective physical therapy and fitness program for teens and pre-teens with spastic cerebral palsy or related conditions. Giant Steps is based on recent advances in neuroscience and rehabilitation research that suggest that:
- Physical inactivity contributes significantly to the disabilities associated with cerebral palsy, and an increase in the level of physical activity promotes life-long health in children with and without physical disabilities.
- Neural plasticity is much greater than previously thought. People with neurological disorders can show improvement in virtually any physical skill if they practice with sufficient intensity, duration, and frequency.
- People with cerebral palsy who cannot generate sufficient levels of muscle activity necessary for strengthening may benefit from exercise programs that integrate electric muscle stimulation with voluntary efforts.
The presentation will include an expanded review of these recent advances, a description of the program, and the results of an initial group of 8 teens and pre-teens who completed the initial six-week program during the Summer of 2008. Results included the emergence of independent ambulation, and elimination of the need for ankle-foot orthoses. Without exception, clients and caregivers expressed greater than expected satisfaction with the program, and demanded that the program be continued and expanded.
Friday 3:00PM – 3:50PM
Presenter: Bruce Harter
A motivational and personal message challenging individuals with disabilities and their parents to consider your own lives and the many things you have before you to accomplish. Mr. Harter has lived a full life with CP since birth.
Saturday 9:00AM – 9:50AM
Presenter: Michelle Saunders Haney, PT, MSPT/Director of Euro-Peds National Center for Intensive Pediatric Physical Therapy.
Intensive Pediatric Physical Therapy has been emerging as an effective complementary treatment for children and young adults with gross motor delays such as CP, Spina Bifida and TBI. This presentation will explain the difference between intensive PT and traditional PT, provide research, and provide video examples of specific techniques used during the treatment sessions.
Saturday 11:00AM – 11:50AM
Presenter: Keith Williams, Director of the Feeding Program at the Penn State Hershey Medical Center and Assoc. Professor of Pediatrics at Penn State College of Medicine. He will be providing an overview of treatments for children with neuro-motor disorders who have difficulty eating and discuss the different intensities of care. Dr. Williams has 18 years of clinical experience pioneering his work with children who have feeding disorders. He is the co-author of the book, "Treating the Eating Problems of Children with Autism Spectrum Disorders & Developmental Disabilities: A Guide for Parents & Professionals.
Saturday 1:00PM – 1:50PM
Presenter: Carol Huegel, NDT, PT Incorporating Hippotherapy
The goals of this presentation will be to introduce attendees to the history of this emerging complementary therapy, define how hippotherapy differs from other equine assisted therapies, outline the benefits and provide recent research. Carol founded it's GREAT!, an equine assisted therapy program, and then co-founded HOPE - HOrses Helping PEople. She is a NARHA Certified Therapeutic Riding Instructor and a Hippotherapy Clinical Specialist, has served for 6 years on the AHA Board of Directors andnow serves as a faculty member for the AHA.
Saturday 2:00PM – 2:50PM
Presenter: Sylvia James-Miller, Parent Partner for the Center for Autism & Related Disabilities for Marion County, as well as the Founder and Executive Director of Parents Helping Parents of Florida, Inc.
This personal account of living with chronic grief allows the attendees to learn the stages of grief. The presentation will help the parents become stronger as they ultimately discover a re-birth of their dreams for their child through the healing process.
Parents and professionals alike will learn how to “cut the red tape” and work together to ensure a successful journey through the education process for all students with disabilities under the Individuals with Disabilities Education Act (IDEA).
Friday 9:00AM – 9:50AM
The Individuals with Disabilities Education Act (IDEA) is the federal law that provides guidelines to states on educating children with disabilities.
This workshop will help you through with the understanding of IDEA and how it effects the IEP process.
Who should attend: Parents of children with disabilities and the professionals that serve them.
Friday 11:00AM – 11:50AM
The No Child Left Behind Act (NCLB) of 2001 helps to ensure that all children receive a high-quality education and holds schools accountable for making sure that all children are learning. This workshop will take you through the ins and outs and help you understand the question: What does No Child Left Behind Mean?
Who should attend: Parents and professionals involved in the school system.
Friday 1:00PM – 1:50PM
This workshop was designed to assist parents with ideas and tips to help their children with homework and be supportive of their children’s efforts.
Who should attend: Parents and professionals involved in the school system.
Friday 2:00PM – 2:50PM
IDEA requires that each IEP include discussion and documentation on eight specific topic areas. This workshop will explain the process and importance of parental participation, with helpful tips and strategies for writing effective IEP goals.
Who should attend: Parents of children with disabilities and the professionals that serve them.
Friday 3:00PM – 3:50PM
Using a properly drafted special needs trust can be a valuable tool for independence for persons with disabilities. It can also “create the future” for the person with disabilities. How a special needs trust is put together will have a huge impact on the quality of life of the person with disabilities.
Who should attend: Parents of children with disabilities, self advocates, and the professionals that serve them.
Saturday 9:00AM – 9:50AM
This workshop is designed to increase awareness of bullying behaviors and the impact of the behavior on victims. This will help you create an individual action plan to heighten awareness of bullying behaviors at school and/or home.
Who should attend: Parents and professionals involved in the school system.
Most vets have been trained in the VA and military options, this track will guide you through your options and help you navigate the disability system beyond the military and VA programs.
Saturday 10:00AM – 10:50AM
This workshop is the Intro 101 of the disability community for newly disabled veterans. Most vets have been trained in the VA and military options, this is your opportunity to learn information and strategies regarding disability options now available to you that may not be attached to military or VA programs.
Who should attend: Disabled Vets, their spouses, family members, caregivers.
Saturday 11:00PM – 11:50PM
Have you ever heard the expression, “you can catch more flies with honey than with vinegar”? Our simple system of collaborative and effective communication tools will help you receive the services you are entitled to with ease instead of a battle.
Who should attend: Disabled vets, their spouses, family members, and advocates.
Saturday 1:00PM – 1:50PM
The programs and services available through the VA, and other disability related communities are all based on the laws of our land. Don’t like a policy? Work directly with legislators and policy makers to help effect change. This is a must attend workshop for those needing or wanting to make a difference.
Who should attend: Disabled Vets, professionals, and family members.
Saturday 2:00PM – 2:50PM
One soldier’s story of effectively negotiating the system – hear a success story for a change! This workshop includes a Question & Answer session with a disabled Vet who is making it work.
Who should attend: Disabled Vets, their spouses, family members, caregivers, and professionals.
This track will provide youth with disabilities, their families and caregivers with information they need to successfully transition from the pediatric healthcare system to the adult healthcare system and from school to employment and to independent living.
Friday 9:00AM – 9:50AM
Presenter: Dr. David Wood, Associate Professor of Pediatrics, Medical Director, JaxHATS University of Florida, College of Medicine-Jacksonville
Friday 1:00PM – 1:50PM
Presenter: Ann Wilson, MST, BCABA, Educational Coordinator and Transition Specialist, Center for Autism and Related Disorders, University of Florida, College of Medicine-Jacksonville
Planning for Life After School for Students with Autism Spectrum Disorders
Friday 2:00PM – 2:50PM
Presenter: John Reiss, Ph.D. Associate Professor of Pediatrics, Institute for Child Health Policy University of Florida
How to promote youth independence in health care, etc; moving from caretaker to coach
Friday 3:00PM – 3:50PM
Presenter: Kelli Bloom, M.Ed. Director of Adult Services FAAST Northeast Regional Coordinator, Hope Haven Children’s Clinic and Family Center
Innovative training and employment opportunities
Saturday 9:00AM – 9:50AM
Presenter: John Reiss, Ph.D. Associate Professor of Pediatrics, Institute for Child Health Policy University of Florida
How to promote youth independence in health care, etc; moving from caretaker to coach
Saturday 11:00AM – 11:50AM
Presenter: Ms. Jacey Fann, MS, Area Supervisor Division of Vocational Rehabilitation
Saturday 1:00PM – 1:50PM
Presenter: Charlotte Temple, Director of Advocacy, The ARC, Jacksonville
Planning for the future is complicated enough: Wills, Estates, Trusts, etc. When there is a person with disabilities involved it can get even more difficult. Come let’s have a frank talk about protection of public benefits, and future planning.
Saturday 2:00PM – 2:50PM
Presenter: Kristine Webb, Ph.D., Associate Professor, Director Disability Resource Center, University of North Florida
Changes in rights/responsibilities from public school to institutions of higher education.
This track will share information for Persons with Developmental Disabilities about Living, Learning and Working, in their Community. The track will consist of eight sessions covering Supported Employment/Benefits, Social Capital, Self-Advocacy and more. Individuals with Autism, Cognitive Disabilities, Prader Willi syndrome, Cerebral Palsy, and Spina Bifida, family members and providers will want to attend these sessions.
Friday 9:00AM – 9:50AM
Many individuals with disabilities desire to work but don’t know where to begin.
This session will give you the tools to begin the path to employment.
Most individuals want to work and to be paid. Come learn how to join the workforce.
Friday 1:00PM – 1:50PM
This session will give information on how to protect your SSI and continue to work without jeopardizing your benefits. The myths will be dispelled! You can work and retain your benefits! It’s all in having the right information…….and this is the session to get the information. Work may soon be in your future once you know that this is really possible…and it really IS!
Friday 2:00PM – 2:50PM
Social Capital means connections between individuals built on trust and reciprocity. Individuals with developmental disabilities and their families will share real life stories on having friends without developmental disabilities.
No segregation here! Listen to individuals share their lives of friendships and fun. Learn how you can begin laying the foundation for social capital.
Friday 3:00PM – 3:50PM
The Agency for Persons with Disabilities works in partnership with local communities to
ensure the safety, well-being and self-sufficiency for the people they serve. Florida is
working hard to assist individuals with inclusion, self-determination, employment and
choice, and be financially responsible as they identify individuals and families needing
APD services. The Med-waiver offers many services and supports for individuals with
developmental disabilities. Many changes have occurred during the past year. This
session will give individuals the opportunity to learn about the services and the most
recent changes. There will be an opportunity for questions and answers.
Saturday 9:00AM – 9:50AM
Individuals with developmental disabilities want what everybody wants….the
opportunity to have their very own place! Learn about supports and services which assist people with developmental disabilities in having just that…their very own place. Individuals will share their successes in living the American dream.
Saturday 11:00AM – 11:50AM
The Family Care Council exists because of the Florida Statues 393. In 1993 the Florida State Legislature established the Family Care Council (Section 393.502). One of the primary functions of the FCC is to share information with families. The Family care Council (FCC) works in partnership with the Agency for Persons with Disabilities (APD) on the needs of self-advocates and their families. Join this session to find out how you can get involved with this organization.
Saturday 1:00PM – 1:50PM
Abuse, neglect and exploitation exist in many different forms. Sometimes people think abuse
means sexual or physical. People need to know exactly what constitutes abuse, neglect and
exploitation and how to handle these situations. When an individual with developmental
disabilities is involved, who should this be reported to and when? Join this session to find out
Saturday 2:00PM – 2:50PM
Many times individuals with developmental disabilities are referred to as “clients, consumers, the handicapped, those people, and other names. What about calling individuals with developmental disabilities, people, individuals, a person? What do people call you? Join this session to learn ways to empower others on how to address individuals with developmental disabilities, with respect.
These sessions will provide attendees with information on state and community resources available to support community re-integration.
Friday 9:00AM – 9:50AM
Presenter: Laurie LoRe-Gussak and David Jones, FDOA
You are not working all the time. Your playtime is what improves your quality of life! In addition, recreation improves your health. This session will talk about the ways that people with disabilities can participate in accessible, inclusive recreation and leisure. Information will be provided on recreation assistive services and technologies. The opportunities are endless! The Florida Disabled Outdoors Association has worked for almost two decades advocating for active leisure and providing indoor and outdoor recreation opportunities – everything from tennis to power soccer to sit-water skiing and much more.
Friday 1:00PM – 1:50PM
Presenter: Justin Stark and Anthony Rodino
The Florida Spinal Cord Injury Resource Center (FSCIRC), established in January 1994, serves as the statewide clearinghouse of SCI resource information for persons who have survived an SCI, their families and friends, healthcare professionals, support groups, the media, and the general public. FSCIRC strives to help reintegrate individuals with a spinal cord injury back into their communities by providing information on state/local agencies, support groups, and recreational activities. FSCIRC also offers one-on-one peer mentoring to assist in adjustment and supplies educational materials on secondary complications to those living with a SCI. This presentation will explain the services offered by FSCIRC and inform the attendees about helpful community agencies and support options. There will be time allotted for questions following the presentation.
Friday 2:00PM – 2:50PM
Presenter: John Guarino/ Pressure Mapping Demonstration/ Teck Scan
A hands-on look at interface pressure mapping for the diagnosis and treatment of ulcers, pressure sores and other complications related to seating & positioning. For clinicians treating these and other complications, Tekscan's CONFORMat System aids in optimal selection and design of seating & positioning support surfaces and solutions.
Friday 3:00PM – 3:50PM
Presenter: Debbie Howells, Supreme Court Judge
More than 16 years after the ADA Standards for Accessible Design became effective many facilities are still not fully compliant, and persons with disabilities are unable to access the services of their government or to access goods and services. Furthermore, the Department of Justice is poised to adopt the first changes to the ADA Standards in more than a decade. Conducting updated facility surveys and bringing transition plans up to date are mechanisms that government entities and public accommodations can utilize to ensure compliance with existing accessibility codes as well as be prepared to meet the requirements of the revised standards. At this session, participants will learn about the best practices employed and the lessons learned as the Florida State Courts System embarked on an ambitious voluntary initiative to re-survey 140 court facilities from Key West to Pensacola.
Saturday 9:00AM – 9:50AM
Presenter: Susan J. Redmon, RN, MPH, CRRN, CCM
Students who grow up needing accommodations in school are used to having them included in their Individual Education Plan (IEP) or their 504 Plan. However, after high school accommodations are only provided when an individual discloses the need for them. This session will explain the rights and responsibilities that the Americans with Disabilities Act (ADA) offers and how to use them to be successful in school, at work, and in the community.
Saturday 11:00AM – 11:50AM
Presenter: Chip Wilson
Florida is recognized as the hurricane state but there are many more emergency situations which effect people with disabilities. This session will list many of these emergencies and how best to increase your chances of being a survivor and not a victim.
Saturday 1:00PM – 1:50PM
Presenter: Kelli Bloom, FAAST Regional Coordinator, Safee Broxton, Communications Specialist
Assistive Technology (AT) enables people of all abilities to pursue employment, education, community living and recreation as independently as possible. The Florida Alliance for Assistive Services and Technology, Florida's federally mandated Technology Act Program, works to improve the quality of life for all Floridians with disabilities through programs that increase access to and acquisition of assistive services and technology. Learn about how FAAST helps people of all ages by providing: Education and Training, Information and Referral, Presentations, Exhibits and Forums, Demonstrations of assistive technology, Assistive Technology Assessments, Device Recycling, Device Loans
Saturday 2:00PM – 2:50PM
Presenter: Valerie Breen, Executive Director
The Brain Injury Association of Florida is the only agency in Florida dedicated solely to serving the needs of survivors of traumatic brain injury and their families. The mission of the Association is to improve the quality of life for the person who has sustained a brain injury and their families by creating a better future through brain injury awareness, prevention, research, education, support services, and advocacy. It is an organization of individuals with brain injuries, their families, and professionals working to help people cope with the long-term effects of brain injury. BIAF is the official state association of the Brain Injury Association of America and is tied to a nationwide network of state brain injury affiliates. The organization assists individuals with brain injuries, their families, and professionals by providing:
Statewide Information and Resource Center
Education and Training
Support Services---Statewide Family/Community Support Program
Toll-free Help Line
Awareness and Prevention Programs
Legislative Advocacy
All resources are provided free of charge to persons with brain injuries and families who request information.
Saturday 3:00PM – 3:50PM
Presenter: Bryan Vaughan, Executive Director of the Governors Commission on Disabilities.
The Clearing House on Disability - a statewide system of disability services and resources for individuals with disabilities, family members and professionals assisting individuals with
disabilities
Florida’s Multifaceted Long-Term Care System TrackThis track will focus on several components of long-term care in Florida: the Long-Term Care Ombudsman Program, which is charged with advocating for residents in long-term care facilities; the Pioneer Network, which is striving to change the culture of aging; Florida’s housing options for today and tomorrow; and the Agency for Health Care Administration, which is Florida’s regulatory agency for long-term care.
Saturday 9:00AM – 9:50AM
The Florida Long-Term Care Ombudsman Program was legislatively established in 1975 to advocate on behalf of residents in nursing homes, assisted living facilities, and adult family care homes. An army of citizen advocates operate out of the Florida Department of Elder Affairs and combine efforts with agencies and stakeholders both statewide and nationally to improve the quality of life and care for Florida’s vulnerable long-term care residents.
Saturday 11:00AM – 11:50AM
The national Pioneer Network recently celebrated its 10th anniversary. The Pioneer Network has a goal of changing the culture of aging, promoting resident centered and focused care, and changing the established institutional environment of nursing homes.
Saturday 1:00PM – 1:50PM
There are many housing options in Florida. This session will provide information regarding current and future housing options, which include assisted living facilities and Naturally Organized Retirement Communities.
Saturday 2:00PM – 2:50PM
The Agency for Health Care Administration is Florida’s regulatory agency for approximately 50 health care services, which include long-term care provided in nursing homes, assisted living facilities, and adult family care homes. Information provided will include federal and state laws, which govern long-term care, and many sources of information provided by the agency to empower consumers when making choices.
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